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Privacy Policy

Last Updated: March 2026

1. Who We Are

CVST Foundation UK is a health charity dedicated to providing hope, help, and a voice for Cerebral Venous Sinus Thrombosis survivors and their families. This policy outlines how we handle your personal data in accordance with UK data protection law.

2. Data We Collect

We may collect information including contact details (name, email, address), website usage data via cookies, and donation or supporter information when you interact with our services or provide financial support.

3. Legal Bases for Processing

We process your data based on consent (e.g., for email updates), legitimate interests as a small charity, or to fulfill legal obligations. We prioritize your privacy in every interaction.

4. Data Retention and Sharing

Your data is kept only for as long as necessary. We may share information with trusted providers (e.g., payment processors, email platforms) and legal/medical professionals when essential for your care or our operational requirements.

5. Your UK Data Protection Rights

You have rights to access, rectify, delete, or restrict your data. To exercise these rights or for any data concerns, please contact our team at hello@cvstfoundation.org.uk. You also have the right to complain to the ICO.

Terms & Conditions

Last Updated: March 2026

1. Introduction and Purpose

By using this site, you accept these terms. This website is for informational and support purposes regarding Cerebral Venous Sinus Thrombosis. It is not a substitute for professional medical advice or clinical diagnosis.

2. Medical Disclaimer

Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. In a medical emergency, call 999 or your local emergency services.

3. Permitted Usage and Liability

Content may be used for non-commercial, personal purposes only. We are not liable for any losses arising from technical errors or inaccurate external links. These terms are governed by the laws of the United Kingdom.

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